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 Erna Mahyuni
Erna Mahyuni
Erna tweets too much on @ernamh. Angry Sabah native, slave to her dog/cat and blogs at ernamahyuni.com
 

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There just isn’t enough information available out there for people to navigate about what to do with a cancer diagnosis. — Unsplash pic

Cancer Diaries: Radiotherapy finally, and playing Pokémon esports to stay sane

Recovering from cancer has left me little time or energy to look after my collection of knick-knacks so declutter I must, because I struggle to bend over to dust low shelves. — Unsplash pic

Cancer Diaries: Letting go of outcomes, expectations and clutter

Perhaps this delay could be a blessing in disguise. — Freepik pic

Cancer Diaries: When my radiotherapy is delayed and my recurrence risk looms

What also irritates me is that accessible assistive tech or aids for the disabled have not improved all that much in the last couple of years. — Picture from pexels.com

Cancer Diaries: Why are we making assistive tech for the able-bodied?

Director James Gunn attends a premiere for the film

Cancer Diaries: On Superman — The ‘E’ in Evil stands for ‘easy’

If I hadn’t been holding on tightly the back of my head would have met the floor; it was terrifying as I held on trying to right myself. — Freepik pic

Cancer Diaries: Where I almost tumble off an escalator and get reminded I’m a fall risk

Steaming soup salves silent struggles. — Picture by Lee Khang Yi

Cancer Diaries: Playing the cancer card has surprising benefits

Public healthcare, not private insurance, has been a lifeline for many Malaysians — but proposed changes risk shifting the burden onto individuals and their retirement savings. — Picture by Raymond Manuel

Cancer Diaries: Please don’t take my EPF for insurance, learn from other countries instead

Am I in constant pain? Not to sound dramatic, but yes, but it's not the kind of pain that drills at you like that neighbour who thinks 6.30am in the morning on a Sunday is the best time to install wooden shelves. — Unsplash pic

Cancer Diaries: Pain still a constant companion as I prepare to be (gently) nuked

Every day still feels like a struggle recovery-wise though I’ve restored some range of motion to my legs.— AFP pic

Cancer Diaries: When cancer is your part-time job

At the same time I wistfully daydream about flying somewhere, anywhere just to clear my head but with a new Covid variant (again) and my legs made of lead, I think next year is a safer bet.—  AFP pic

Cancer Diaries: Cancer-free for now but the journey isn't over

I asked my physiotherapist if my body was supposed to be like this; muscles hard and stiff, legs especially so. He said no, it was rather unusual but he joked that my legs had had to carry me throughout such a challenging journey. — Unsplash pic

Cancer Diaries: EPF comes through, while I start turning into the Tin Man

If you hop between various private and public hospitals, EPF will find it confusing and will attempt to get you to apply for a medical report from each institution again without considering that medical reports take so much time and cost. — Bernama pic

Cancer Diaries: When having cancer is still not enough for EPF to approve my claims

So far, so good. The wound cleaning session went well though next week will be a challenge getting to the hospital as KL roads will likely be in a gridlock — Picture by Erna Mahyuni

Cancer Diaries: Carrying around a bottle of blood and other hospital horror stories

As you're reading this I will be at the hospital for my lumpectomy and probably being discharged the same day. — Picture from pexels.com

Cancer Diaries: Today I'm getting cut open

Besides a successful surgery to remove the cancer, Michael Bolton has gone through chemotherapy and radiation as well as a second surgery due to an infection. — Picture via Facebook/ Michael Bolton

Cancer Diaries: Might lose the boob after all and finding comfort in Michael Bolton

Thanks for ladders that stay strong, even when legs sometimes don’t. — Unsplash pic

Cancer Diaries: The horrors persist and I will file a complaint

Hell hath no fury like a hungry, sleep-deprived cancer patient faced with Holy Week double parking. — Freepik pic

Cancer Diaries: Where I picked a fight with a church

I got done with an X-ray but will need to see an anesthesiologist, have another echocardiogram, one more round of immunotherapy and then a pre-surgery medical appointment. — Unsplash pic

Cancer Diaries: The treatment worked but now comes surgery

A picture illustration shows a Facebook logo reflected in a personu00e2u20acu2122s eye, in Zenica, March 13, 2015.  u00e2u20acu201d Reuters pic

The disturbing court of public opinion

Commercial buildings stand in the central business district of Kota Kinabalu, Sabah September 23, 2020. u00e2u20acu201d Picture by Firdaus Latif

Must Sabah continue to be the poster child for neglected infrastructure?

People wearing face masks sightsee and snap pictures in the heart of Kuala Lumpur during Hari Raya Aidilfitri holiday May 3, 2022. u00e2u20acu201d Picture by Ahmad Zamzahuri

The strange new normal of not giving a s***

People break fast at Dataran Merdeka during the Muslim fasting month of Ramadan in Kuala Lumpur April 19, 2022. u00e2u20acu201d  Picture by Firdaus Latif

Laying down arms when the war isn't over

The Employeesu00e2u20acu2122 Provident Fund  logo is seen at its headquarters in Kuala Lumpur March 2, 2022. u00e2u20acu201d Picture by Miera Zulyanan

How long more will Malaysians live in quiet desperation?

Of the total 19,444 crimes reported between January and July 2021, 8,403 were scam-related cases. u00e2u20acu201d iStock pic

Dear government, what are you doing with my data?

Form Five students get ready to sit for their SPM examination at SMK Seksyen 7 in Shah Alam March 2, 2022. u00e2u20acu201d Picture by Yusof Mat Isa

Malaysian youth need to break the cycle of abuse indoctrination

The section for Covid-19 vaccination registration via the MySejahtera mobile application is displayed on a mobile phone in Kuala Lumpur February 23, 2021. u00e2u20acu201dPicture by Yusof Mat Isa

How safe is our data with the government?

10 daripada 20 bayi selamat dilahirkan pada Hari Kebangsaan 2016 di Hospital Kuala Lumpur, 31 Ogos, 2016. u00e2u20acu201d Foto Bernama

In Malaysia, foreign wives are trophies but foreign husbands? Treason

A man busks next to the KLCC LRT station in Kuala Lumpur, July 11, 2016. u00e2u20acu201d Picture by Saw Siow Feng

Punishing the arts won’t bless you, Selangor

People wearing face masks on Saloma Bridge in Kuala Lumpur, February 18, 2022. u00e2u20acu201d Picture by Yusof Mat Isa

Preparing for an endemic when the pandemic's not over

Thanks for the memories, Nuu00e2u20acu2122est. u00e2u20acu201d Picture by Erna Mahyuni

Farewell, Nu’est: My first and last K-pop love

Sixteen people were fined for attending a 20-person birthday party at a flat in Hougang last year. u00e2u20acu2022 Unsplash pic

Dodging bullets, chasing dreams

A man waks past a Malaysia Prihatin wall decoration in Kuala Lumpur August 25, 2021. u00e2u20acu201d Picture by Ahmad Zamzahuri

Pandemic complacency will literally cripple our nation

A man uses the MySejahtera trace feature. u00e2u20acu2022 Picture by Ahmad Zamzahuri

The how-to, simplified guide to Covid-19 communications

Over 40 per cent of UK residents say that they do not have a proper desk to work on in their homes, according to a new report. u00e2u20acu2022 IStock.com/ETX Studio pic

Work shouldn't be a death sentence

A man works from the comfort of home during phase three of the movement control order in Shah Alam April 15, 2020. u00e2u20acu201d Picture by Miera Zulyana

Mental health check-ups should be routine and mundane

People queue in front of a Bank Simpanan Nasional branch in Klang September 6, 2021. u00e2u20acu201d Picture by Yusof Mat Isa

Why can’t we trust poor people with money?

A man uses the MySejahtera trace feature. u00e2u20acu2022 Picture by Ahmad Zamzahuri

We must do right by the disabled and vulnerable

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